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More expensive than luxury cars: here is the world most expensive medication

Zolgensma is a one-time-only gene therapy treatment for children with spinal muscular atrophy who are under the age of two (SMA). Because it "dramatically alters the lives of families impacted by this horrible disease" and the claimed expense of bringing new treatments to market, Novartis has judged that Zolgensma is worth that much money. However, there is some debate over this price.

For starters, the National Institutes of Health and several charities dedicated to finding treatments for SMA, including Sophia's Cure, Cure SMA, Getty Owl Foundation, Fighting SMA, Jadon's Hope Foundation, the Gwendolyn Strong Foundation, and Miracle for Madison, funded the early development of Zolgensma. Many of these organizations rely on donations from patients' relatives and friends to fund research and clinical trials for novel SMA treatments.

Novartis' Zolgensma is the world's most costly medicine, but it, like Luxturna, is given in a single dosage, making it more cost-effective than many others. It's given as an intravenous infusion by a healthcare expert to people with spinal muscular atrophy, which is a degenerative disorder that weakens muscles and causes movement issues over time. The medication costs $2,125,000 (about £1.5 million).

The FDA authorized Zolgensma on Friday, based on the AveXis research, making it only the second gene therapy ever licensed for a hereditary condition. According to Novartis, there are currently around 700 people who are suitable for the treatment, and about 30 babies are born each month with the illness.

The expense is expected to be covered by insurers. Payment options will be available, according to the business.

The figures, according to AveXis president Lennon, may appear surprising. However, he claims that the medicine is well worth it. Spinraza, the only currently available treatment for spinal muscular atrophy, costs hundreds of thousands of dollars per year. Zolgensma is a one-time, potentially life-saving treatment.


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Content created and supplied by: LehlohonoloBethuel (via Opera News )

Gwendolyn Strong Foundation Hope Foundation National Institutes of Health Novartis SMA


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